January 2024: Update from the Spectrum 10K research team

The Spectrum 10K team would like to thank everyone who has engaged with the study and this consultation so far and have asked HVM to publish the following update:

We are aware that our consultation participants have generously given us a tremendous amount of their time and energy to discuss issues that are deeply personal and important to them, and we are very grateful. 

 This valuable two year process with our consultation partners Hopkins Van Mil has resulted in contributions from over 500 people. The rich, detailed and thoughtful feedback we have received has given us much to reflect on and learn from since the consultation closed in the summer.  We are now in the process of collating our responses to the consultation feedback and recommendations to explain what we have learnt, the changes we will make in how we conduct research studies and how and why we want to continue to engage with the autism community in a meaningful way.  We are aware that our consultation participants, and the autism community more broadly, are awaiting this information and we would like to ask for your patience while we finish this process. The full independent report and our response will be published on both the Hopkin Van Mil website and the Spectrum 10K website in due course.